The Realm of Caring Team
Aline was diagnosed with hydrocephalus, a build up of fluid in the brain, when her mom was seven months pregnant. At one-month old, Aline had a Pudenz valve placed which got infected within two weeks. She was in the hospital for about seven months under antibiotics and she started having seizures by the third month that she was in the hospital due to the severity of the infection.
Since starting cannabinoid therapy, Aline has changed in a significant way. She's sleeping better, her appetite is just amazing, she's more aware of her surroundings and her squint eye seems to get better everyday. Not to mention that her seizures have dropped to 0 in over 6 months!!! The most exciting is that pre-school is now a reality; she has started the past week and she's enjoying it tons! We have also been able to go out/travel without being worried sick about her seizures. I would love to mention that my relatives are also doing better than ever, as it was hard for them to know that we were always alert and that we might have had to run to the hospital because Aline would seize.
The impact is just so much! I've mentioned previously we can now see for a better way of living for us and Aline. The whole family is just overwhelmed of how Aline has progressed and how her seizures have dropped. They have been through a lot with with us, going to the hospital, staying with Aline at the hospital (as an emergency room visit we knew for sure that she'd stay in for at least 3 days). We are all just very happy with Aline's progress. You can't imagine how happy her cousins are, as she can now attend various events, she even went to a baseball game last week!! We (my whole family and I) would like to thank you from the bottom of our hearts for the opportunity you are giving Aline for a better chance at life. We cant express and thank you enough for how much you are doing for us.
Americans for Safe Access has published the following Press Release to encourage movement in regards to the CARERS Act. Together, we appreciate your support!
Patient Community Calls on Congress to Move Forward on Medical Cannabis Legislation
(Washington, DC) - Today, Americans for Safe Access (ASA) delivered a letter on behalf of 13 patient-based organizations to Senators Chuck Grassley (R-IA) and Patrick Leahy (D-VT) and Representatives Joe Pitts (R-PA) and Gene Green (D-TX) urging them to give the Compassionate Access, Research Expansion, and Respect States (CARERS) Act (S.683, H.R. 1583) a vote in the United States Senate Judiciary Committee and House Committee on Energy and Commerce: Subcommittee on Health, respectively. The letter was signed by Americans for Safe Access, Citizens United for Research in Epilepsy (CURE), Danny Did Foundation, Epilepsy Foundation, Finding a Cure for Epilepsy and Seizures (FACES), Hope4Harper, Hope for Hypothalamic Hamartomas, Lennox-Gastaut Syndrome (LGS) Foundation, National Multiple Sclerosis Society, National Women’s Health Network, Realm of Caring, The Michael J. Fox Foundation, and Tuberous Sclerosis Alliance.
Today more than 300 million Americans live in states that are implementing medical cannabis laws in conflict with federal law. The passage of the CARERS Act would allow state medical cannabis programs to continue without federal interference, move cannabis from Schedule I to Schedule II in the Controlled Substances Act, remove the cannabis-derived compound cannabidiol (CBD) entirely from the schedule, create access to banking services for medical cannabis businesses in states where it is legal, eliminate the DEA-mandated “NIDA-monopoly” on cannabis available for research, and allow Veterans Health Administration physicians to write recommendations in states that have established a medical cannabis program.
“The Epilepsy Foundation strongly supports the CARERS Act and we thank all the members of Congress who have signed on to this important legislation,” said Phil Gattone, president & CEO of the Epilepsy Foundation. “Lifting federal barriers to cannabis research would allow families and providers considering this treatment option to have the information they need to make educated decisions, while supporting safe, legal access to medical cannabis.”
Support for the CARERS Act has been gaining momentum in both houses. Senate Judiciary Committee members Lindsey Graham (R-SC) and Al Franken (D-MN) recently joined the Senate version as co-sponsors and last week, Congressman David Young (R-IA) joined the House version as a co-sponsor.
“This letter represents the growing number of voices in the patient community joining the call for committee leaders to allow the CARERS Act a committee vote,” stated Beth Collins, Senior Director of Government Relations and External Affairs for ASA. “We urge Senator Grassley and Representative Pitts to listen to the many Americans who support medical cannabis and the more than 2 million people who already benefit from cannabis as a treatment option by giving CARERS an opportunity for a vote.”
The letter comes on the eve of Senator Lindsey Graham’s Senate hearing, Researching the Potential Medical Benefits and Risks in the Judiciary Subcommittee on Crime and Terrorism. Patients and activists are encouraged by Senator Graham’s interest in moving this issue forward, and hope that Senator Grassley and Representative Pitts will allow the CARERS Act a committee vote.
With over 100,000 active members in all 50 states, Americans for Safe Access (ASA) is the largest national member-based organization of patients, medical professionals, scientists and concerned citizens promoting safe and legal access to cannabis for therapeutic use and research. ASA works to overcome political and legal barriers by creating policies that improve access to medical cannabis for patients and researchers through legislation, education, litigation, grassroots actions, advocacy and services for patients and caregivers.
A New Journey – Learning, Love and Policy
Sadly just 10 days after our son’s story was published in the local Highlands Ranch Herald for making it four years and nine months seizure-free, Benjamin started having seizures again Thanksgiving night 2015 which was nine months after he was weaned from all pharmaceuticals.
It started out just stopping every seizure without the use of the heavy duty Diazepam rectal gel. To, currently, preventing them all together. Going on 120 days seizure free on the Charlotte's Web CBD therapy. There have been a few mild break thru seizures previous to this seizure free streak, but mild and very short lived compared to what they were before the CBD oil therapy...and with absolutely NO side effects! This is now mandatory to keep the seizures and other issues under control and at bay. Taylor has shown great improvement in seizure control with the oil. Moods are better, No Diazepam needed, and NO seizures currently. Taylor has been able to come off of every prescription pharmaceutical medication out of the 8 he was on except 1 of them, and once he is seizure free for 6 months he will be able to wean off that final pharmaceutical medication. So to this family, Charlotte's Web, Cannabidiol therapy oil, has proven extremely effective and has went above and beyond "said claims". It's like a miracle! I cannot express the magnitude of the positive impact these oils have had on their lives and seizure control! CBD oil helping is great, and wonderful news and a miracle to see happening for their son. Thanks to this amazing "Side-effect free", natural oil, our son is happy, healthy, off big-pharma medications and is seizure free! He has his life back and that is the biggest blessing. We have all we ever wanted for him, good health, happiness, and on the road to life without seizures. So far so good. Whether it decreases them 50%, 75% or 100% , it is all a positive change for him and proof the oil works. It is far better than the 0% he was getting on the pharma medications for all his issues. It is fantastic to see him smiling again and to be able to finally say, "I have Epilepsy... Epilepsy doesn't have me!"
The future may not always be clear or look bright. Sometimes it's like you are given a timer as to how long you can look in life, but no matter how the future looks, we have to look up to the sky, keep our heads held high and pray. Hold on to hope, because sometimes, that's all you've got. Hope , faith, and love... that's what get's us through.
TAYLOR IS OUR CHILD, A CHILD:
A REAL PERSON, WITH REAL STRUGGLES. WHO DESERVES A CHANCE AT A NORMAL LIFE.
CHARLOTTE'S WEB IS GIVING HIM THAT AND MORE!
Dr. Kirby Gengler has extensive experience treating children. Conditions such as ADD/ADHD, autism, sensory integration, behavior issues, seizure disorders, sleep problems, and food allergies, all can respond well to a multi faceted integrated holistic approach.
"My goal is to identify what health issues are most important to you and create a plan with natural solutions" - Dr. Gengler DC
Now's a great time to take advantage of Dr. Gengler's current promotion for RoC Clients:
Receive 20% off of standard pay per visit treatments* or receive $20 off per month on our family plans*
Chiropractic and Cranial Evaluation for Realm of Caring members
*Chestnut St location only. Not combined with any other offer.
Learn more about Dr. Gengler at ChiroWorksInfo.net
Scheduling and billing is not handled by RoC staff so please be sure to contact the practitioner(s) directly.
Secondline Jewels, a Louisiana based business, re-purposes broken drum cymbals into jewelry and fine accessories. The owners have a personal connection to RoC and are showing their support through donating 20% of all sales from their Signature Line to the RoC.
Read the story of their son, who is nearing 3 months of seizure freedom, here.
Due to some swelling, I couldn't walk from the pain for over 2 years. On 'good days' I'd try to go for nightly walks but usually had to turn back after just walking past 3 or 4 houses. It wasn't fun; living in the dark and trying to find fulfillment doing basically nothing. I started taking the hemp oil six days ago: half a dropper full twice daily. I cannot even begin to tell you the improvement I've seen in that short time!! I feel mentally alert again. I no longer have that deathly morbid fatigue. My mood is ...dare I say it... almost happy! Things that I had to force myself to do I now do naturally and without thought. And best of all....I have taken 1 mile walks every day since taking it with absolutely no problem!!!!! Smiling, no pain, no fatigue, for the first time in many years!! No way could any placebo effect cause this. I have tried so many things with sometimes disastrous results, and to tell the truth, had resigned myself to a lifetime of misery...It is awesome feeling like my old self after over 28 years.
Realm of Caring is excited to announce our new partnership with Swarm Technologies, operators of SmartBee Controllers®. “One of our organization’s key roles in the cannabis community is to raise the bar in terms of quality expectations. We think the SmartBee Controller®system provides the tools that allow growers to take the quality of their gardens to the next level, and we are excited about the future of this new partnership,” said Heather Jackson, CEO of The Realm of Caring Foundation.
With an emphasis on quality, SmartBee Control System is a real-time, remote-access solution for any greenhouse or grow room, monitored and controlled from the palm of your hand. Simply configure environmental set points, and the SmartBee Controller’s “smart logic” process detects problems, sends an alert, and automatically takes corrective steps to prevent and resolve critical grow room events! How cool is that!
In addition to their business support, every time a SmartBee Controller® product is purchased, a portion of the sales will go towards The Realm of Caring Foundation’s collaboration in clinical research being done at Johns Hopkins University School of Medicine to help validate the benefits of cannabinoid therapy.
Read more about the partnership below. And if you are a business owner interested in supporting Realm of Caring, or know someone who is, you can learn more about how to contribute here.
Swarm Technologies and The Realm of Caring Foundation Announce Strategic Partnership to Support Clinical Research in Cannabinoid Therapy.
Denver, Colorado – November 15, 2016 -Swarm Technologies LLC, dba SmartBee Controllers® (SmartBee Controllers) and The Realm of Caring Foundation are proud to announce their strategic partnership to support research, education, and treatment of epilepsy and other brain related disorders through innovative cannabinoid therapies.
“Through our SmartBee Cares™ initiative, which was established to support organizations that use nature's plants and herbs for health and medicinal purposes, we are proud to partner with The Realm of Caring Foundation to help support families in need gain access to cannabinoid medicine and therapies, and learn best practices for treating their children and loved ones,” said Skye Hanke, co-founder and Business Development Officer of SmartBee Controllers.
Hanke went on to say, “Every time a SmartBee Controller® product is purchased, a portion of the sales will go towards The Realm of Caring Foundation’s collaboration in clinical research being done at Johns Hopkins University School of Medicine to help validate the benefits of cannabinoid therapy.”
The Realm of Caring Foundation was established in 2012 by Heather Jackson, the Stanley Brothers, and Paige Figi following the Dr. Sanja Gupta CNN Special entitled WEED, which featured the first two success stories of children using Charlotte’s Web™. The Realm of Caring Foundation’s mission is to educate the general public and policy makers to the benefits of cannabinoid supplements and performing advocacy for those using cannabinoid therapies.
“One of our organization’s key roles in the cannabis community is to raise the bar in terms of quality expectations. We think the SmartBee Controller®system provides the tools that allow growers to take the quality of their gardens to the next level, and we are excited about the future of this new partnership,” said Heather Jackson, CEO of The Realm of Caring Foundation.
Clients of The Realm of Caring Foundation,a 501c3 non-profit organization,are numerous and diverse.Of its over 30,000 members, 42% are under the age of 18; and its clients are affected by a variety of disorders and diseases, including cancer, multiple sclerosis, chronic pain, HIV/AIDS, epilepsy, Parkinson’s, and many more.
SmartBee Controllers® was created by tech-savvy growers to serve the needs of growers, with the goals of making growing less complicated and to minimize the chance of crop loss. SmartBee’s proven wireless solution integrates all grow-room systems into one software application that allows for monitoring and controlling the garden from anywhere with an internet connection. The system’s robust data analytic capabilities allow both the hobbyist and commercial grower to achieve greater and more consistent yields. The SmartBee solution delivers the peace of mind that comes from having 24/7 remote access to your garden.
About Swarm Technologies LLC
Headquartered in Las Vegas, NV, Swarm Technologies LLC (dba SmartBee Controllers®) is a privately-held leader in developing smart technology solutions for growers that simplify operations, enhance yields, improve quality and increase profitability. For more information on SmartBee Controllers® visit www.smartbeecontrollers.com or call (866) 373-0847.
I have been diagnosed with PPPD (Persistent Postural-Perceptual Dizziness), PTSD, high blood pressure, Diabetes Type 2, and high LDL and Triglycerides. I have lived with migraines and severe dizziness 24/7 since 2011 and have suffered from the migraines as long as 2005. I was prescribed twelve different antidepressants and antipsychotics and they all made me extremely suicidal and depressed. I was out of ideas and was ready to call it quits.
My doctor, neurologist, and two psychiatrists recommended I check out CBD oil for help. I started doing research and about 2 months went by before I tried contacting Realm of Caring. They were very friendly and helpful through the entire process of me asking questions, etc. After about 2 months on Charlotte's Web Everyday Advanced CBD Oil, I began to realize that my horrible thoughts were going away. I have been on CBD since July of this year and can now laugh again and have almost zero thoughts of suicide anymore. For someone who lived with the thoughts every single day of his life since he was very little, this is a wonderful change. My blood pressure checks out perfect every time I visit the doctor now. My blood sugars are easier to control.
The only things left that I struggle with the high LDL/Triglycerides and the dizziness, which is extremely bad, but that's MUCH better than where I was just a few months ago. It's been worth it to me and my family and friends. I'm so glad that I decided to give this a try!