Raise the Realm Day 10: Addy- Brain Malformation

Before Cannabis:
Addelyn was born with a significant brain malformation that causes her to have seizures that are very difficult to control. When Addy’s seizures started at 5 months of age, we fought them with an army of traditional antiepileptic medications legally prescribed by her epileptologist. It was then we learned the dangers of these medications. Overly medicated, Addelyn basically stopped living. She slept 22 out of 24 hours each day, suffered significant developmental regression, and stopped interacting with the world around her, including her loved ones. We carried her body through life with us for months and were provided with palliative care counseling for families with a terminally ill child.


After Cannabis:
Within five minutes of Addelyn’s first dose of a high-CBD oil, she smiled. At that point, there was no doubt that this treatment option would make a positive difference in her life. Over the next year, we slowly added more cannabis to her treatment regimen and reduced the standard pharmaceutical drugs that were holding her hostage. Slowly, we got more Addy back and maintained reasonable seizure control. Addy is not “all better”, but is SO much better than she was. Today, she smiles, laughs, hugs her brother, and is even eating by mouth once again- all skills robbed from her by the traditional prescription medications she was prescribed. Her development continues to amaze us. Last week, Addy said, “Momma” for the first time and she is learning to use an augmentative communication device. She even attends preschool with her typical peers. Our family is SO thankful to have found a safe and effective therapy that has given Addy a quality of life that is worth living again.

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Addy
Last modified on Wednesday, 22 March 2017 14:33
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