Raise the Realm Day 5: Charlotte- Epilepsy

At just three months old, little Charlotte Figi experienced her first seizure, an experience that would send her and her family on a path that would eventually change the world. Charlotte’s parents were out of options and searching for solutions. Thankfully they discovered medical cannabis. After careful research and contacts, the Figis met the Stanley Brothers. They were able to provide a high CBD extract into Charlotte’s diet, and the results were remarkable.

After the CNN WEED special with Dr. Sanjay Gupta aired in August of 2013, the family featured received an outpouring of support and questions, especially how others could obtain access as well. Enter Stanley Brothers Social Enterprises and CW Hemp.

Today, Charlotte is an outgoing little girl who is thriving and enjoying life, like every other child her age. She recently completed her first full year of school and is now in the third grade. A young fashionista in the making, Charlotte has displayed an affinity for fabulous foot fashion, looking forward to her birthday shoe-shopping trip as much for the new shoes as the chance to ride up and down the escalators. “She is a girl through and through,” says Paige. A self-proclaimed modern artist, Charlotte wakes up each day and heads straight to her paint set. Her masterpieces are influenced by her favorite color orange, and the outdoor serenity that her home in Colorado provides.

Charlotte
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Raise the Realm Day 6: Leigh- Cancer

My name is Leigh. My first personal experience with cancer was in 1995 when my mother was diagnosed with stage 4 ovarian cancer and given 6 months to live. Her name was Charlotte and she was a visionary. She lived for 6 years instead of 6 months and when I was first diagnosed in 2012 with Stage 1 breast cancer I remembered her words…”I wish I had never done that chemo or the radiation.”

I chose to have bilateral mastectomies after determining I was BRCA positive. I declined the pharmaceutical drugs that were offered to me and went on my own path to healing. That path has included exercise, healthy eating and juicing, keeping stress low, being grateful…my recipe changes along with the seasons.
In April of 2016, I began taking Charlotte’s Web for swelling in my right hand from overwork, not knowing the cancer was back. In late June, with the swelling completely gone in my hand, I scheduled a surgery to remove scar/fat tissue from the site of the previous cancer and it ended up being malignant. I upped the Charlotte’s Web to therapeutic doses along with high-dose THC in August and completed 60 grams of The Stanley Brothers’ THC Concentrate in 60 days after moving to Colorado in November. I have just gotten a clear PET scan. I am so grateful that the laws are changing and the research is finally beginning on cannabis. I know had the researchers been allowed to explore the medicinal benefits of this “weed” there would be more wellness on the planet….and my mother could still be alive. I am certain that CBD/THC are main components to my wellness and I am so grateful for the access I have to these medicines.

Leigh
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Raise the Realm Day 7: Kendell- PTSD

I was a Loadmaster on a MC-130P Combat Shadow during the Tsunami Relief Effort in 2004/2005, seeing mass devastation, and unworldly damage. My world was changed just a few months later when I sustained a dislocated and fractured right leg, and Traumatic Brain Injury. I went through the VA gambit, twice tasting the working end of loaded firearm before I finally decided to quit all medications until I found a better alternative. Sleeping medications, anti-depressants, anti-this and anti-that; I knew I couldn't continue that pace for long. After speaking with family, friends, and fellow veterans, I decided to try cannabis for the very first time on my 28th birthday with some of the most loving people I have in my life. The benefits I see not only help with my PTSD, but also positively benefit my physical health, physical abilities and day-to-day cognitive function.

Since my introduction in 2012, I've competed in 4 Warrior Games, and traveled with MSI Mining to install gold mining equipment around the world, and served as the Director of West Coast Operations for the Road Warrior Foundation- providing Adventure Therapy to our military veterans. No other medication in my life has helped me more than Cannabis and CBD. I hope to continue to show the benefits of this organic option as time goes on.

Kendell
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Raise the Realm Day 8: Luke- Autism

Our little boy who we call Baby Luke, is 4.5 years old, and the apple of our eye. He was born what we believed to be a happy handsome little boy and as parents do we loved him unconditionally.

After a few months we noticed that there were issues in Baby Luke's development, so we brought him to the doctors. Approximately 2 years later, baby Luke was diagnosed with Profound Non-Verbal Autism, massive sight issues and a vestibular condition. We were heartbroken as we knew too well what this meant in Ireland and the hardships both Luke (and us as his parents) would have to face to get schooling, OT, speech, and language etc.

Shortly after Luke's diagnosis, we noticed a massive shift in Luke's behavior, not eating, not sleeping, hurting himself and others, we could see his sensory issues explode in front of us driven by the severe anxiety of his surroundings.

We, at this point, have been surviving on 3 hours of sleep a night, at our complete wits end- the continual crying, the no sleep, the violent outbursts, the self-harming- our little boy was not there anymore; he had changed, he was lost in his own mind, his own condition trapping him to this behaviour.

So, we reached out to doctors, the prescriptions kept coming but nothing worked! So at the last point, we tried Charlottes Web Advanced Solution, starting at 0.2ml twice a day and adjusting the dosage along the way. In the first night, Baby Luke slept 9.5 hours! He was 24 hours away from being admitted to a hospital by our GP for refusing to eat in over 5 weeks and what did our boy do? He started to eat ! Yogurt, apples, bananas, fries, pasta, we couldn't believe it. We cried and cried, as parents angry at ourselves for not trying this sooner, but then tears of joy that our boy would not require a feeding tube.

The results were and still are so amazing that we had to share our story with everyone who would listen. ASD parents have to see with the own eyes to believe what it does.

We started an awareness campaign called Life Being Blue on Facebook. I would recommend any parents in Europe that are on the fence to look at the daily videos look at what it has done for our son and family! Our little boy had gone from skin and bones and riddled with social and neurological disorders, to a child that is trying to communicate trying, to learn and nearly singing! Seeing is believing and Baby Luke's Videos are there for everyone to see!

There is nothing to loose and much to gain!

Please share our page! Education on this is key people who live with severe ASD need to realize that CW is a possible solution to regain a standard of life. And this is key it's about potentially gaining a standard of life.

Daddy Luke, Mommy Donna and Baby Luke Luke
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Raise the Realm Day 9: Mary- Pain

Hi! This is Mary, and Its been almost two years since I participated in Evolve the storytelling project presented by Realm of Caring Foundation, and I wanted to update everyone on how well I'm still doing almost two years later! For starters I'll be celebrating my 59th birthday in a couple of months, and I'm holding steady! Better then steady actually! I'm sure most of my doctors thought all my canna meds (CW, THCA & THC) was going to be a placebo effect. Still they couldn't deny the decrease in pain, increased mental clarity, and my 58 pound weight loss since I started taking my canna meds in May of 2014. The biggest benefit for me was getting off all my prescriptions except for 2 1/2...thyroid, hormone and blood pressure being the half. I did have a setback when my doctor agreed to ween me off my Zoloft after 23 years of use because I was having breakthrough anxiety. That Was A Big Mistake to do that right after Thanksgiving and before the December holidays and to date the hardest thing I ever put myself through. What helped me through that rough spot was upping my canna meds and changing to 200mgs SAMe, (Zoloft replacement) meditation, therapy, a wonderful husband, friends and the RoC community! Keep the faith, and when they (the doctors, the specialist, the government) tell you there is nothing they can do but pump you full of pharmaceuticals call Realm of Caring! The caring of their patients, clients, the quality of the products they recommend, and the fact that they will have your back every step of the way! I say Thank You! Thank You! Thank You! Here's to a better quality-of-life!!!!!

Mary
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Raise the Realm Day 10: Addy- Brain Malformation

Before Cannabis:
Addelyn was born with a significant brain malformation that causes her to have seizures that are very difficult to control. When Addy’s seizures started at 5 months of age, we fought them with an army of traditional antiepileptic medications legally prescribed by her epileptologist. It was then we learned the dangers of these medications. Overly medicated, Addelyn basically stopped living. She slept 22 out of 24 hours each day, suffered significant developmental regression, and stopped interacting with the world around her, including her loved ones. We carried her body through life with us for months and were provided with palliative care counseling for families with a terminally ill child.


After Cannabis:
Within five minutes of Addelyn’s first dose of a high-CBD oil, she smiled. At that point, there was no doubt that this treatment option would make a positive difference in her life. Over the next year, we slowly added more cannabis to her treatment regimen and reduced the standard pharmaceutical drugs that were holding her hostage. Slowly, we got more Addy back and maintained reasonable seizure control. Addy is not “all better”, but is SO much better than she was. Today, she smiles, laughs, hugs her brother, and is even eating by mouth once again- all skills robbed from her by the traditional prescription medications she was prescribed. Her development continues to amaze us. Last week, Addy said, “Momma” for the first time and she is learning to use an augmentative communication device. She even attends preschool with her typical peers. Our family is SO thankful to have found a safe and effective therapy that has given Addy a quality of life that is worth living again.

For the latest visit Addy on Facebook

Addy
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Client Spotlight: Chris

I tried several brands of oils and now I buy Elixinol only because of consistent quality. I had issues from one bottle to the next from competitors and Elixinol has been consistent and excellent for my usage.

I first bought the oil to combat stress, as drugs have failed me or worsened my condition. Anxiety feels physically painful at the extreme; I now lead a much calmer, peaceful existence with absolutely no mood impairment or cover up. Elixinol works nearly instantly when administrated under my tongue.

Here's a list of results thus far:
  • At 63, I wear stronger glasses each year. I have been using Elixinol maybe 3 months, now on 3600 strength. When I spoke with a doctor on the phone, he asked about eyesight which is driving me nuts. He suggested I get last year's glasses. I am now using a prescription from April 2014.
  • I have some rosacea on my very fair skin, topical application has reduced size and redness, continuing use. I also have shingles on lower back, and the pain is gone, the length of breakout is reduced by about half and the blistering was gone within hours!
  • As to anxiety? I have woken up nightly and in the A.M. for about 5 years with painful heart pounding, gasping for breath in terror seemingly for little reason. I been able to discontinue a prescription medication- 1 down, 2 now gradually decreasing strength. Depression has lifted. I wake up fine, and am returning to a noticeably happier person; my entire family has noticed.
  • Just yesterday I ate too much sugar (danged holidays), last night the acid was burning (pretty agonizing feeling) my throat, and I have no problems with that in my normal diet. About 1/2 dropper-full of 3600 and it was gone. I'm a tad tired from sugar poisoning but no lasting gastrointestinal effects. Although I'm fairly careful, I once did take prescription drugs for this- genetically this acid reflux caused gastro/esophageal cancer in my father and grandfather. I am fortunate that my diet has helped as long as I follow it - but it was Elixinol that settled it last night, nothing else has EVER done it- prescription or over the counter.
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    Client Spotlight: Jeremy

    I have been diagnosed with PPPD (Persistent Postural-Perceptual Dizziness), PTSD, high blood pressure, Diabetes Type 2, and high LDL and Triglycerides. I have lived with migraines and severe dizziness 24/7 since 2011 and have suffered from the migraines as long as 2005. I was prescribed twelve different antidepressants and antipsychotics and they all made me extremely suicidal and depressed. I was out of ideas and was ready to call it quits.

    My doctor, neurologist, and two psychiatrists recommended I check out CBD oil for help. I started doing research and about 2 months went by before I tried contacting Realm of Caring. They were very friendly and helpful through the entire process of me asking questions, etc. After about 2 months on Charlotte's Web Everyday Advanced CBD Oil, I began to realize that my horrible thoughts were going away. I have been on CBD since July of this year and can now laugh again and have almost zero thoughts of suicide anymore. For someone who lived with the thoughts every single day of his life since he was very little, this is a wonderful change. My blood pressure checks out perfect every time I visit the doctor now. My blood sugars are easier to control.

    The only things left that I struggle with the high LDL/Triglycerides and the dizziness, which is extremely bad, but that's MUCH better than where I was just a few months ago. It's been worth it to me and my family and friends. I'm so glad that I decided to give this a try!

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    Client Spotlight: Ciara

    Miss Ciara has had seizure's since birth, she has a CP diagnosis, a seizure disorder, microcepholoptomy and recently was re-diagnosed with LGS - Lennox-Gastaut Syndrome... we have faced challenges since the beginning and given no hope or encouragement of healing they just painted a glim picture... But I told them her life will be what we make of it & I am doing my best to give her the best life she can have with the challenges we face. When I heard about the Marijuana - CBD- Hemp Oils helping with seizures, I was excited and filled with hope, especially after reading testimony after testimony of it working for all these kids just like my Ciara... Since the first dose, the first day I have been seeing a huge reduction of seizures, like almost obsolete! Seen an increase in her keeping her eyes open, seeing her happier and laughing. Seeing her kick her legs with excitement. It is a true God given gift what God has given us in this plant. It's time to debunk the myths, time to end the prohibition on Marijuana.... for my Ciara, and for all those like her & others facing/dealing with other situations in their lives.
    I am thankful for this CW Everyday Advanced, it is the miracle we have been waiting a lifetime for.
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    Client Spotlight: Patricia

    At the urging of my oldest daughter, I purchased Charlotte's Web 1 oz, 200mg bottle of hemp oil. When I was 28 (1988), I came down with CFIDS/Fibromyalgia. The first 7 years I was bedridden. I slowly improved, but I've never enjoyed good health since then. I stopped driving about 5-6 years ago due to severe brain fog. Bodily pain varies; what afflicted me most has been frequent migraines, severe fatigue, a definite feeling of malaise, light and sound sensitivity (so bad I had to quit going to church and other functions); the list goes on and on.

    Due to some swelling, I couldn't walk from the pain for over 2 years. On 'good days' I'd try to go for nightly walks but usually had to turn back after just walking past 3 or 4 houses. It wasn't fun; living in the dark and trying to find fulfillment doing basically nothing. I started taking the hemp oil six days ago: half a dropper full twice daily. I cannot even begin to tell you the improvement I've seen in that short time!! I feel mentally alert again. I no longer have that deathly morbid fatigue. My mood is ...dare I say it... almost happy! Things that I had to force myself to do I now do naturally and without thought. And best of all....I have taken 1 mile walks every day since taking it with absolutely no problem!!!!! Smiling, no pain, no fatigue, for the first time in many years!! No way could any placebo effect cause this. I have tried so many things with sometimes disastrous results, and to tell the truth, had resigned myself to a lifetime of misery...It is awesome feeling like my old self after over 28 years.
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    Client Spotlight: Taylor

    Taylor started on the CBD oil in December 2015 with Neurologist approval. So the new journey began...

    It started out just stopping every seizure without the use of the heavy duty Diazepam rectal gel. To, currently, preventing them all together. Going on 120 days seizure free on the Charlotte's Web CBD therapy. There have been a few mild break thru seizures previous to this seizure free streak, but mild and very short lived compared to what they were before the CBD oil therapy...and with absolutely NO side effects! This is now mandatory to keep the seizures and other issues under control and at bay. Taylor has shown great improvement in seizure control with the oil. Moods are better, No Diazepam needed, and NO seizures currently. Taylor has been able to come off of every prescription pharmaceutical medication out of the 8 he was on except 1 of them, and once he is seizure free for 6 months he will be able to wean off that final pharmaceutical medication. So to this family, Charlotte's Web, Cannabidiol therapy oil, has proven extremely effective and has went above and beyond "said claims". It's like a miracle! I cannot express the magnitude of the positive impact these oils have had on their lives and seizure control! CBD oil helping is great, and wonderful news and a miracle to see happening for their son. Thanks to this amazing "Side-effect free", natural oil, our son is happy, healthy, off big-pharma medications and is seizure free! He has his life back and that is the biggest blessing. We have all we ever wanted for him, good health, happiness, and on the road to life without seizures. So far so good. Whether it decreases them 50%, 75% or 100% , it is all a positive change for him and proof the oil works. It is far better than the 0% he was getting on the pharma medications for all his issues. It is fantastic to see him smiling again and to be able to finally say, "I have Epilepsy... Epilepsy doesn't have me!"

    The future may not always be clear or look bright. Sometimes it's like you are given a timer as to how long you can look in life, but no matter how the future looks, we have to look up to the sky, keep our heads held high and pray. Hold on to hope, because sometimes, that's all you've got. Hope , faith, and love... that's what get's us through.

    TAYLOR IS OUR CHILD, A CHILD:

    A REAL PERSON, WITH REAL STRUGGLES. WHO DESERVES A CHANCE AT A NORMAL LIFE.

    CHARLOTTE'S WEB IS GIVING HIM THAT AND MORE!

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    Client Spotlight: Benjamin

    A New Journey – Learning, Love and Policy

    Sadly just 10 days after our son’s story was published in the local Highlands Ranch Herald for making it four years and nine months seizure-free, Benjamin started having seizures again Thanksgiving night 2015 which was nine months after he was weaned from all pharmaceuticals.

    Benjamin 14 years old began to have Tonic-Clonic type seizures every few days with some lasting up to four minutes in length; he had four of these within 14 days into December. It was advised by his neurologist at the Denver Children's Hospital that we put him back on pharmaceuticals. After some research and a new article that expressed recent warnings from the FDA in regards to suicidal thoughts and actions as a side effect of 11 anti-epileptic drugs, three of which Benjamin had been on before and was being asked to take again, did not seem like an option any longer! So in mid-December I made the decision to start Benjamin on Charlotte's Web Hemp Extract after contacting the Realm of Caring in Colorado Springs on how to purchase Charlotte's Web, and help me with dosing so that we could keep Benjamin seizure-free once again in a natural way without side-effects!

    Within a couple of days I shared the news of our new therapy change for Benjamin with his school nurse as I had for any other medication change over 10yrs since pre-school (I also included in the email, his teachers and principal). I knew we lived in Colorado and marijuana itself is legal and though I am giving my son hemp extract which is considered a dietary supplement that can be mailed to all 50 states; I did not think that we would have legal issues surrounding our choice for our son to have an alternative medicine.

    To my surprise I received a call from Child Protective Services three days before Christmas asking me if I had a prescription to give my son Charlotte's Web. In my inquiry to find out who reported us I would eventually be threatened with a caseworker if I did not comply with the child welfare administrators request for me to provide two doctors notes. I quickly realized that she was expecting me to have a registration card for my child taking a dietary supplement which she was requiring under article XVIII in section 14 of the Colorado Constitution as it applies to medical marijuana. I was able to point out to her that if she just read a little further in section 16 of the Colorado Constitution as it talks about hemp, it is exempt from being referred to as marijuana and therefore I was not required to provide a registration card to give my child a dietary supplement of hemp extract. This would later be confirmed through the Colorado Department of Public Health and Environment (CDPHE) who provide the registration cards to medical marijuana patients and they would also tell me that if our child is taking hemp we do not need a registration card! So after educating our local Department of Health and Human Services on the differences between hemp and what they consider to be a marijuana derivative she changed her tune and asked for a list of prescriptions that my son was taking and only then would she closed my case but not until after Christmas. She let us believe through the whole Christmas holiday weekend that we might be paid a visit. We feared that if the caseworker came to our house that we would have lost our son over a dietary supplement they knew nothing about, all in retaliation for asking questions.

    By asking questions it would be revealed to us that we were reported for a "suspicion of abuse and neglect" because we told the school that we were giving our child Charlotte's Web. We were not asking to give it to him on school grounds or asking a nurse to administer it, we were just merely stating that we were changing his therapy at home but they could watch for any changes at school since they were with him the majority of the day! We figured out it was the school nurse based upon what she said in the transcript read back to us, since CPS could not give us a name of who reported. It would be expressed to me that nurses are mandatory reporters in the community, in an effort to mitigate any wrong doing. However, I would discover the school district had actually recommended that all school nurse report ALL FAMILIES on a suspicion of abuse and neglect regardless of whether they thought parents like me were abusing or neglecting my child. The school district actually felt by having their nurses report families to CPS they were protecting themselves, whether a family was providing their child with what they consider a marijuana derivative including hemp.

    Of course I had every right to report the school nurse to the Department of Regulatory Agency (DORA) for false reporting. In her report, the nurse stated that "the child is very safe and family very loving" which would be a contradiction to why she would report based upon a suspicion of abuse and neglect. She also added, she was only reporting us on a recommendation by her employer so that she would not lose her job. Since I have a history of working with nurses in my past position as an administrative assistant (in the healthcare field); I did not feel it was ethical for an employer to demand their nurses to report families like ours when they did not equip them with the educational tools to make the right decision, on cannabis or the laws surrounding it. I never reported the nurse. It has been very important for me to not only look out for my family, but also for those who are responsible for looking after my child. Part of my mission was to make sure the school district was not pinning nurses against families and vice versa or families would be hiding in the shadows due to a lack of trust!

    Within the first couple of weeks into the New Year 2016 I would be introduced to Stacey Linn and hear her story with son Jack Splitt, a young man just a little older than Benjamin with cerebral palsy who was not allowed to have his medical marijuana patch on at school. Stacey Linn passed Jack's Amendment in 2015, so school districts could start writing medical marijuana policies for their students and allow medical marijuana to be administered on school grounds in a discrete location. Unfortunately no school district wrote policy for medical marijuana because it was only recommended at that time.

    Stacey Linn would accompany me to meetings at the school district where we asked questions why they would demand their school nurses to report families like us to Child Protective Services for giving our children alternative yet legal medicine. The school district felt it was a liability for their nurses and they were in fear of losing Federal funding if we brought cannabis on campus to give to our medically fragile children. I would eventually file a case with the ADA (Americans with Disabilities Act) manager at the school district since I found it discriminatory for nurses to reporting children to Child Protective Services when most of these children are medically fragile, are usually on an IEP (Individual Education Plan) and the school district gets Federal funding for these children. It was quickly realized that the school district like others in Colorado had not written a policy surrounding medical marijuana, cannabis, or hemp etc... My job turned to working with school board president Meghann Silverthorne and vice president Judith Reynolds to get a policy rolling in Douglas County, and I had their support right away! I attended every school board meeting since February to bring light and educate the other school board members what happened to us and how we would like to see a policy not only implemented here, but our nurses educated so what happened to us would never happen to another family!

    Stacey Linn would eventually start working with Representative Jonathan Singer to bring forth HB16-1373 "Students Medical Marijuana Use At School" also known as “Jack’s Law” to legislators at the State Capitol, so that school districts in the entire state of Colorado would have to write medical marijuana policy! I and a lobbyist by the name of Cindy Sovine-Miller were brought into help with the grassroots efforts in spreading the word about this new bill along with many other parents who were fighting for this too! One day with Benjamin at the Capitol, we ran into our Conservative Senator in Douglas County, Chris Holbert. After hearing our story, offered to Co-sponsor HB16-1373 in the Senate especially for Benjamin. Since the bill mainly laid out plans for medical marijuana in regards to Article XVIII in section 14 of the Colorado Constitution it was not applicable that hemp in section 16 of the Colorado Constitution be brought into the bill since they are different. It was still up to me to make sure that when my school district was writing their policy that they differentiated hemp from marijuana, but the question remained if they would since a Colorado Springs school district D49 would be the first in the state to adopt a medical marijuana policy though they did not differentiate hemp as I suggested in a school board meeting they held in the spring.

    After 91 of 100 legislators between the House and Senate voted YES on HB16-1373, on Monday, June 6th 2016 with Benjamin looking over Governor John Hickenlooper's shoulder, he sealed the deal by signing HB16-1373 "Students Medical Marijuana Use At School" into Colorado law! We were a very proud family to be there at that moment in time, with Jack, Stacey, along with other families watching history being made! Benjamin and Jack would be given one of the pens the governor used to sign the bill with as well!

    Our job was not done just yet, we are now in the implementation stage. We received word that the Douglas County School District board of directors will be presenting what we call, “Benjamin's Policy” at the next school board meeting on Tuesday, July 19th 2016! Not only will the school district be taking into account Jack's Law (we just passed regarding medical marijuana), they have also heard my request to differentiate hemp oil, cannabinoid products as well as add the following to protect the nurses and staff:

      "District employees shall not be obligated under district policy for reporting suspected child abuse or neglect based solely on the parent or guardian administering medical marijuana, hemp oils or other cannabinoid products in compliance with this policy. This is not intended to alleviate any employee from his or her reporting obligations under applicable state law."

    Even though D49 was the first to vote on their Medical Marijuana policy, Douglas County is actually the first to write a comprehensive Cannabis policy that includes the Administration of Medical Marijuana, Hemp Oils and/or Cannabinoid Products as well as protecting their staff and end the criminalization of families trying to give their medically fragile children a better quality of life!!!

    We are proud of our school district that heard our requests and wrote a policy that fits the need in our community, this way families who have been hiding it can come out of the shadows, and nurses do not have to fear losing their jobs when they know we are actually helping our sick kiddos!!! As of Saturday, July 16th 2016, Benjamin will be seven months seizure-free, but not only is he free from seizures again, this time his world has opened up more thanks to Charlotte's Web Hemp Extract, his memory has improved to the point he can sing along to songs on the radio because he can remember the words. He was able to read short speeches before legislators this year, but he would have never been able to do that prior to Charlotte's Web. He is communicating, learning and building things…without any adverse side-effects...life is good for Benjamin and it was worth the fight so others would not have to worry about what we went through!

    When I think back to the mom I was 11yrs ago when Benjamin was first diagnosed with Epilepsy at 3yrs old. On how the pharmaceuticals scared me and changed my son in negative ways...I realized my fight this year was for the scared mom I was 11yrs ago. I wanted this alternative back then, but if I had to fight this fight for cannabis back then I would have not been strong enough to do what I did this year!!! It was worth it all; even for the parents who do not yet know they might need this same alternative one day, but will not have to fight for access in schools in Colorado!!!



    Written by Amber Wann
    Permission is given to share all or parts of our story in a way that would benefit others!

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    Client Spotlight: Aline

    Aline was diagnosed with hydrocephalus, a build up of fluid in the brain, when her mom was seven months pregnant. At one-month old, Aline had a Pudenz valve placed which got infected within two weeks. She was in the hospital for about seven months under antibiotics and she started having seizures by the third month that she was in the hospital due to the severity of the infection.

    Since starting cannabinoid therapy, Aline has changed in a significant way. She's sleeping better, her appetite is just amazing, she's more aware of her surroundings and her squint eye seems to get better everyday. Not to mention that her seizures have dropped to 0 in over 6 months!!! The most exciting is that pre-school is now a reality; she has started the past week and she's enjoying it tons! We have also been able to go out/travel without being worried sick about her seizures. I would love to mention that my relatives are also doing better than ever, as it was hard for them to know that we were always alert and that we might have had to run to the hospital because Aline would seize.

    The impact is just so much! I've mentioned previously we can now see for a better way of living for us and Aline. The whole family is just overwhelmed of how Aline has progressed and how her seizures have dropped. They have been through a lot with with us, going to the hospital, staying with Aline at the hospital (as an emergency room visit we knew for sure that she'd stay in for at least 3 days). We are all just very happy with Aline's progress. You can't imagine how happy her cousins are, as she can now attend various events, she even went to a baseball game last week!! We (my whole family and I) would like to thank you from the bottom of our hearts for the opportunity you are giving Aline for a better chance at life. We cant express and thank you enough for how much you are doing for us.

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    Client Spotlight: Brooklyn Grace

    Baby Grace is truly Amazing! She has post vaccine injuries, including seizures and a severe rash. She has been through so much after she received her vaccine, and what I mean by amazing is her strength is solid even with her setbacks. She will still have a smile that will steal your heart. We are confident that we will get her to being two! Even though she is unable to go outside unless we are going to hospital or appointment (the sun affects her skin).

    CW has been the most promising help for our baby Grace thus far we are all so thankful I honestly have no idea what we would be doing at this point for Grace if we didn't have CW and RoC.

    Her skin is night and day! We have not seen any seizures, skin is looking so much better she more active, more verbal communication, and she seems to be catching up to her milestones, blood work is improving. Her lab's just came back and they are the best they have been since she's been effected by her vaccine! We are so excited about this recovery we are seeing!

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    Meet Jonah

    Jonah was diagnosed with a brain tumor in November of 2013, a month and a half after we moved about an hour outside of Boston. He was born with congenital Hydrocephalus, so this visit was just a routine scan that turned into a nightmare. Doctors gave us the choice to watch the tumor over the next three months to see if there was any growth. At that point, we would do a follow up scan to see if the tumor was growing. During this time I was told about a young boy using cannabis oil to treat a brain tumor. Staying up late every night, I started doing loads of research on cannabis oil and I found a ton of studies that were being done outside of the US.

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    Client Spotlight: Brooke


    Brooke was born in Colorado Springs to Dwayne and Diedre Watson. She was a beautiful baby with no hint of what was to come.

    Exactly 5 months to the day she was born, she was having trouble sleeping and was fussy. I picked her up and she went into her first grand-mal. It lasted an hour and 15 minutes. Her second seizure was exactly one month later. It also lasted an hour. From then on her seizures became much more frequent but shorter. She developed normally for 3 years. She loved to sing. Barney songs were memorized by all of us. She loved to play waitress and walk around the table with a pad and pencil and say “whayawant?”

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    Client Spotlight: Addelyn


    Here's what Addy's family has to say about her amazing progress:

    “What a difference a year makes!! Addy is an adorable two year old little girl with infantile spasms and intractable, medication-resistant epilepsy. At this time last year Addelyn had racked up more than twenty separate emergency hospitalizations for either increased seizure or heinous side effects of the medications she was prescribed to control them, in about nine months’ time. Heavily medicated and still seizing many times a day, Addy was sleeping upwards of twenty-two hours every day and had NO quality of life. We were at the point where we were simply carrying her body through life with us and were largely convinced she would not be with us much longer.

    Within minutes of her first ultra-low dose of a non-psychoactive CBD oil, Addelyn SMILED. It had been months and months since her last half-hearted grin. The sudden flood of hope was overwhelming. Over time, we slowly increased her dosage of CBD, and even added THCa, to her regimen. During the last year, Addelyn has gained about ten pounds, discontinued the Ketogenic diet, reduced her Sabril dose, and is currently in the final stages of her ONFI wean, all while maintaining reasonable seizure control. Our once lifeless child, now rolls over, sits independently, plays purposefully and excitedly with toys, gives HUGE smiles, hugs her brother, and laughs out loud EVERY SINGLE DAY! Our time as a family is no longer spent in a hospital, but at the zoo and the park.

    Addelyn started cannabis therapy just over one year ago. What a transformation!!! Hands down, it was the best decision we ever could have made for her. Cannabis has given Addelyn back a life worth living.

    Now, we work to advocate and educate. Please join us at facebook.com/groups/TEAM.ADDY.PATRICK to follow Addelyn's progress and help spread her message: Cannabis is Medicine!!”

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    Client Spotlight: Charlotte

    Three years ago life seemed to be slipping away from 5-year-old Charlotte Figi, diagnosed with Dravet Syndrome. Everyday her life was ruled by seizures - dozens of them. This rare, uncontrolled epilepsy caused her to have over 300 seizures a week, as well as severe cognitive and motor delays. "All other treatments failed and she had been through periods in her life where she wasn't going to make it,” Charlotte’s mother, Paige Figi, said. “So I had said goodbye to her in my heart many, many times.”

    Doctors had tried without success to control Charlotte’s seizures, and the family was running out of options. “It was absolutely, devastatingly impossible, but as a mother, if you have children you understand this, you would do anything for your kids even if it sounds ludicrous, even if it sounds controversial,” Figi said.

    What she very quickly found was the CBD oil was not just the end-of-life comfort measure, it was giving Charlotte a second chance at life. “It is a 180-degree difference from what we went through before. Her seizures are 99.9 percent controlled,” Figi said. “She has one, two or three seizures per month, from 1,200.” In addition, according to her mother, Figi’s severe autism-like behaviors have also been eradicated. The type of cannabis used to treat her had been cultivated to be extremely low in tetrahydrocannabinol (THC) the psychoactive component of the plant that gives a "high", but boosted with the molecule cannabidiol (CBD). Therefore, the extract is hemp oil and administered sub-lingually as an oil as opposed to smoking it. The supplement, named Charlotte’s Web after Figi, was developed by the Stanley family, inspiring Paige Figi to co-found the non-profit foundation Realm of Caring and create the politically active non-profit Coalition for Access Now.

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    Client Spotlight: Chandler Joy

    Our daughter, Chandler Joy, began having tonic-clonic seizures at 4 months old. As new parents, my husband and I were terrified. Her seizures were 60-90 minutes long and would only stop after administering high amounts of Diastat and Ativan. The paramedics were at our house multiple times per week and the doctors and nurses at the hospital knew us on a first-name basis. The amount of drugs being put into her little body slowed her respiration to the point that she was continually hospitalized for days and intubated several times. She was put on at least ten different anti-epilepsy drugs – that all failed. At 13 months she developed infantile spasms and was put on ACTH. She gained 20 pounds in three months and developed kidney stones, which eventually led to kidney failure. Our baby was then put on dialysis. To say we were living a nightmare was an understatement. Chandler was hospitalized almost weekly due to the debilitating seizures, and she stopped crawling and talking. We installed gym mats in our house so she could move around a bit without injuring herself. We tried one drug after another and went to see specialists at three hospitals. No one could help our daughter. At times, she was so drugged up on Topamax, Depakote, Onfi, and others, that she sat staring into space with a blank look on her face. Our daughter was not present, and the seizures continued.

    In the summer of 2013 I saw a special on Dateline about Charlotte’s Web medical marijuana being used to treat epilepsy. We had tried everything and failed, so I tracked down how to get on the waiting list for Charlotte’s Web and we waited… The CBD oil has changed our daughter’s life! Chandler now rides a scooter, takes our dog for a walk, talks (although she has a severe speech delay due to the seizures and pharmaceutical medications), colors, plays on her Ipad, plays basketball, swims, rides carousels, and enjoys things other 5 year old little girls enjoy! We have a long way to go in her path of recovery, but we are seeing daily progress and healing. We have had at least an 80% reduction in seizures and now they only last 20-30 seconds. She hasn’t needed a rescue medication in over a year and her daily anti-epilepsy medications have been decreased by 2/3. Our family has a normal life, something we have never known. We do not live in constant fear that she will have a seizure at any moment as they are now so far and few between. Even when she does have one, it is manageable and does not cause hospitalization and developmental set-backs.

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    Client Spotlight: David

    It has been a month since I started taking Charlotte's Web oil for my MS and resulting optic neuritis. I have not had a single incident where I could not swallow & breathe since my very first dose!! (I was previously having one incident a day) My eye sight is also improving again! I no longer see glares (like starbursts) around lights & bright objects (in my left eye) and both eyes are seeing much more clearly. I have gone from a 200 reader to a 150 reader in one month!! I wasn't even thinking it would help my vision in both eyes, but it is. For several months I tested at a 400 reader after I first went blind, but I was at a 200 before, so now my eyesight is even better than it was prior to going blind!! This is for my right eye, not the one that went blind. There is still a cloudiness in my left eye from the nerve, but I can see a difference in the clarity without the glare!

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