Client Spotlight: Drew

Meet Drew:

Drew has been enduring seizures for over 3 years now, resulting in a Lennox Gastaut diagnosis. Within the past 6 months he began having drop seizures resulting in violent injury requiring constant ER visits. He has had numerous black eyes and scars on his forehead from the trauma. Also, around this same time frame, Drew was being dismissed by many of his therapists for not performing/attaining any of his set goals.

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Client Spotlight: Jessie

I was a hospice nurse when a work accident suddenly ended my career and altered my life drastically. It left me disabled with a spinal injury, limited mobility, and constant excruciating pain.

It seems so silly now, but I was so scared to try cannabinoid therapy. Even though I was taking opiates and benzodiazepines around the clock to manage the pain and muscle spasms.

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Client Spotlight: Taylor

Submitted by his mom, Stacey,

This young man has lived his entire life plagued by epilepsy since he was born and will continue to do so for the rest of his life. But this is not just any epilepsy, It's UNCONTROLLED EPILEPSY, among other medical issues. Being born one month premature set the stage for so many of his issues, including epilepsy, Autism, bipolar disorder, depression, and anxiety, both generalized & social. He has a learning disability. He has spent more of his life in doctors offices & hospitals & asleep recovering from seizures, then he has normal activities. He is special needs due to all these issues combined. He will probably never be able to live on his own due to all this and his disabilities. This disease & medical problems, being born premature & just never having a normal life due to them has deprived him of the ability to learn and retain even basic life/ living skills. We are his advocates.

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Client Spotlight: Hyrum

Hyrum used to have 15 or more seizures a day. Doctors tried more than 10 pharmaceuticals to try to get them to stop. Sometimes he was on up to 6 meds at a time, that made little difference to his seizure control. We were at a dead end. We just had to live with watching him seize multiple times a day, every day.

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Client Spotlight: Eli

Our son, Eli, was diagnosed with epilepsy at age 5. He is currently 15 years old. He has had fine motor and developmental delays since he was born. He never had complete seizure control. When he approached adolescence, his seizures increased dramatically to at least one per week. We had difficulty controlling his seizures and his behavior became more and more erratic with the increased anti- seizure medications and frequent seizures. After more testing, we found out last year that he has a genetic disorder, which was helpful to explain many of the symptoms he has had, but upsetting because we knew the seizures would not be outgrown.

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Client Spotlight: Devin

To many, this is just a kid on a bike. Simple, right?

I can remember a boy who used to be terrified to leave the house, who couldn't go to the bathroom by himself, had fits of rage and had so many seizures every day that he couldn't finish a sentence. I can remember the day he decided to get on a swing. It was just one week after we started to use CBD. It was like meeting our kid for the first time. Just playing a game or drawing a straight line at 7 yrs old was impossible. It devastates parents and families as well...deeply.

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Client Spotlight: May

She was diagnosed with Generalized Idiopathic Epilepsy at the young age of 4. When we first started Charlotte's Web, she was having approximately 6 episodes a day of varying seizures. She was not responding to various pharmaceuticals with full control; they all affected her personality, as well as the seizures, turned her into a different person.

I am thrilled to say we are approaching a full year since a tonic or tonic-clonic seizure!! We just went for an extended EEG to see if her smaller ones that are harder to detect are still occurring. We were accepted into the Realm Cares Financial Aid program but we already know this is going to have a huge impact for us.

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Raise the Realm Day 1: Ayden- Cerebral Palsy

Our four-year-old son, Ayden, was born fourteen weeks premature suffering a grade four intraventricular hemorrhage. Along with this brain bleed, he suffered a myriad of issues, which compounded the severity of injury. Shortly after Ayden's first birthday we started noticing abnormal eye, arm, and leg movements. Given the circumstance, we knew he would have developmental delay. However, we soon learned that these abnormal movements were in fact catastrophic seizures further regressing his development. It was at the age of 18 months that he was diagnosed with both spastic quadriplegic cerebral palsy and infantile spasms, an epileptic syndrome characterized by an EEG pattern termed hypsarrhythmia. This hypsarrhythmia is essentially a chaotic and disorganized pattern of brain activity that is, in Ayden's case, an expression of brain injury.

Initially, it was uncommon for Ayden to go even an hour without seizure activity. After failing countless pharmaceuticals that only left him with long lasting side effects, we began exploring cannabinoid therapy. Thanks to the Realm of Caring, we found an amazing level of knowledge and support. As soon as we started CBD oil, we noticed a significant decrease in seizures. We also began getting eye contact and even his first belly laugh! It was on the EEG following CBD treatment that our neurologist found he no longer had the hypsarrhythmia.

Though this has improved, Ayden still must cope with the painful debility associated with his muscle spasticity. This exaggerated muscle tone effects all four of his extremities and significantly impairs his daily functioning. Unfortunately, treatment requires more than just CBD, and that is something we do not have access to in our state. If we fail to relieve his spasticity, we face the real possibility of Ayden needing invasive orthopedic and neurosurgery. Contractures, scoliosis and hip dislocation are the most common conditions requiring corrective surgery. Surgeries like selective dorsal rhizotomy, tendon lengthening or transfer, osteotomy and limb reconstruction are some of the most painful surgeries to endure. Imagine your body uncontrollably contorting and being "stuck" in painful positions and instead of being overly sedated from pharmaceuticals, getting relief from cannabis and actually being able to make developmental progress. We know cannabis can help with this as we have traveled to try this for him. Not only does it provide physical relief, but cognitive improvement as well. Ayden is non verbal. The month we tried cannabis, he said "Mom" for the first time. That same day while waiting on an elevator, he looked at a stranger, lifted his head off my shoulder, and said "Hi" to her. This is the relief we see when Ayden can try cannabis. We are fighting tirelessly to have access in our state so Ayden can have that 24/7.

Ayden
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Raise the Realm Day 2: Brandon- Brain Injury

I always thought of myself as an athlete. After playing hockey for several years I joined the high school wrestling team. Wrestling is where I belonged. I went off to MSU where I learned to work hard and become the person I am today. I received a NCAA Division II All-American honors in my senior year.

2008 was the start to my MMA career.

I've always worked hard, but taking care of myself before, during and after each training session wasn't always a priority, until recent years. I quickly realized my body no longer healed the same as it did when I was in high school. Recovery is important to me and taking care of myself quickly became my priority! I started taking vitamins and eating healthier but those changes still couldn't prevent pain or help ease it. My daily routine consisted of protein shake full of vitamins for breakfast followed by a handful of more vitamins like zinc, turmeric, b-12’s, C, Fish Oils, wobenzym etc. and for pain, I don't even want to get started.

Fast forward 8 years, 20 professional MMA fights, 2 ACL surgeries, dislocated ribs, broken hand, multiple broken fingers and thumbs, & broken arm, I was ready for some relief any relief. When I'm in pain I get moody and I become antisocial and withdrawn. I am not the best version of myself in pain. CBD has done for me what I thought only quitting could do. I started taking CBD 3 months ago and it's results are better than I could ever expect it to be. Battling anxiety and muscle fatigue and inflammation, I also struggled with insomnia and as an athlete no sleep means no recovery. I was always in pain or injured, CBD has given me another chance. Protecting my body and brain from further damage and taking something like CBD that treats pain, is anti inflammatory, anxiety and insomnia was a no brained . Now it's part of what I do! My goal is to become a champion, in order to achieve that my body has to be in top condition.

Brandon
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Raise the Realm Day 3: Fernanda- Autoimmune

En Español

(Read in English Here)

Mi nombre es Fernanda y vivo en Argentina, tengo 6 hijos y 3 nietos. Padezco desde hace 15 años de fibromialgia y desde hace 7 años neuralgia del trigémino. Llamado también dolor suicida. Ambas enfermedades no son mortales ni terminales pero tan dolorosas que pueden afectar terriblemente la vida.

La neuralgia del trigémino comenzó con una pequeña electricidad en la cara en forma esporádica y luego de ser diagnosticada y medicada, avanzó año a año, como así la cantidad de medicaciones o tratamientos realizados, alopáticos, homeopáticos, acupuntura etc, sin ningún resultado. El año pasado las crisis eran tan fuertes que el mas mínimo pestañeo, respirar, comer o cualquier rose, me provocaban descargas eléctricas insoportables. Estaba terminando una carrera después de 4 años que realicé con mucho sacrificio y veía que con el dolor lacerante que avanzaba no iba a poder terminarla.

Entre otras consecuencias de esta enfermedad, puedo mencionar el aislamiento, la tristeza, el terror por realizar tareas simples como cepillarme los dientes, o tan esenciales como dar un beso a mis seres queridos. Mi familia me sostenía y acompañaba con mucho amor, y sufrían impotentes por no poder hacer nada y ver mi sufrimiento. En octubre del 2016 saque turno con mi medica decidida a operarme, a pesar de la resistencia de ella debido a los serios riesgos de la operación y sus posibles secuelas. Una semana antes del turno con mi neuróloga escuche en la radio sobre el tratamiento con el aceite medicinal de cannabis y me contacte con el padre de una niña con epilepsia refractaria y que gracias al tratamiento había disminuido las 54 convulsiones diarias a ninguna.

Así que en octubre comencé con el aval de los prestigiosos médicos que me estaban tratando el tratamiento con Charlotte`s Web, y a los 15 días el dolor había disminuido al 60 % comencé a poder sonreír, hablar sin miedo, comer normalmente, dormir. Hace ya 6 meses que estoy con este nuevo tratamiento la neuralgia me disminuyo totalmente y los médicos están muy sorprendidos y contentos de los avances y la eficacia. Pude terminar mi carrera, reincorporarme a la vida social, besar a mis seres queridos y sonreír. Mis seres queridos también sonríen.

Tengo la esperanza de que el aceite medicinal puede ser la respuesta a tantas enfermedades incurables o llevar paz y alivio a las personas que las padecen y sus seres queridos.


In English

My name is Fernanda, I live in Argentina and I have 6 kids and 3 grandchildren. I was diagnosed 15 years ago with Fibromyalgia and 7 years ago with Trigeminal Neuralgia also called "Suicide Pain". Both diseases are not mortal nor terminal, but they are so painful, they affect your life terribly.

My Trigeminal Neuralgia started with a little tingle electricity like sensation sporadically and then it turned into a diagnosis. After being medicated, every year, it got worse as the number of medications increased. I did allopathic, homeopathic and acupuncture treatments with no results. Last year, my crisis were so strong that I could not blink, breath, eat or touch anything without having an electric charge that caused me unbelievable pain. I was about to finish my degree, but the pain did not permit me to finish.

Another consequence of this terrible disease is that it made me lonely, sad and I was terrified to brush my teeth or to kiss my loved ones. My family was supporting me, but they were suffering because they could not help me. In October 2016, I went to schedule a surgery with my Doctor who was against it due to the risk and side effects of the surgery. A week before my appointment with my doctor, I heard about CBD on the radio and I contacted the father of a child whose daughter was using the oil and went from having 54 seizures a day to none.

So, I started Charlotte's Web with the help of my doctors and 15 days after taking Charlotte's Web Hemp Extract, my pain had reduced 60%! I started smiling, talking without fear of pain, eating and sleeping. Today, 6 months later after using Charlotte's Web, my neuralgia is completely out. The Doctors are very surprised about the efficacy of the oil. I could finish my degree, I went back to having a social life, kiss my loved ones and smile. My family is smiling as well.

I hope that this oil could be the answer to so many incurable diseases and that it will bring peace and alleviate all those people who suffer and their families.

Fernanda
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Raise the Realm Day 4: Melody- Rare Disease

As a parent of a child, receiving a “life-limiting” diagnosis is devastating. After months of hundreds of infantile spasms per day, we knew we had to try something different, something doctors were not initially on board with, especially with Melody being only nine months old. The two front-line medications did not stop her spasms, so we took a leap of faith and followed our gut instincts, bought a bottle of Charlotte's Web CBD extract and, with the help from the Realm of Caring we figured out her dose based on her weight. She was not one of the “miracle stories” where the seizures stopped after the first dose, but we were prepared to give CBD a real chance to work, so we agreed to try it for three full months. She continued to have seizures, but after three weeks of Charlottes Web, we saw noticeable improvements in her cognitive development. She started sitting up on her own and was babbling again, a few skills she had lost after the seizures started. After seven weeks on Charlotte's Web, her infantile spasms stopped altogether and since that date, she has continued to improve in all areas, much to the surprise of her doctors. A little girl with Aicardi Syndrome who we were told would never crawl, walk, or talk is now dancing, taking long walks outside, running, and has learned about 40 words. We decided to wean Melody off of Sabril and her last dose was September 2016; so she is now only taking Charlotte's Web and she is beating the odds, one milestone and one word at a time.

We are over the moon watching our Aircardi princess love her life. Melody gives kisses and hugs and smiles and sings, and we know in our hearts she would not be doing these things without Charlotte's Web. Her story gives hope and has encouraged other families to try CBD oil and has helped change lives of other children struggling with seizures. We could not be more proud of our girl and her resilience and we look forward to her future, something doctors warned us may not be possible. Charlotte's Web continues to be the best decision we ever made for our sweet Melly and we remain forever grateful to the Stanley Brothers and everyone at the Realm of Caring and CW hemp.

Melody
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Raise the Realm Day 5: Charlotte- Epilepsy

At just three months old, little Charlotte Figi experienced her first seizure, an experience that would send her and her family on a path that would eventually change the world. Charlotte’s parents were out of options and searching for solutions. Thankfully they discovered medical cannabis. After careful research and contacts, the Figis met the Stanley Brothers. They were able to provide a high CBD extract into Charlotte’s diet, and the results were remarkable.

After the CNN WEED special with Dr. Sanjay Gupta aired in August of 2013, the family featured received an outpouring of support and questions, especially how others could obtain access as well. Enter Stanley Brothers Social Enterprises and CW Hemp.

Today, Charlotte is an outgoing little girl who is thriving and enjoying life, like every other child her age. She recently completed her first full year of school and is now in the third grade. A young fashionista in the making, Charlotte has displayed an affinity for fabulous foot fashion, looking forward to her birthday shoe-shopping trip as much for the new shoes as the chance to ride up and down the escalators. “She is a girl through and through,” says Paige. A self-proclaimed modern artist, Charlotte wakes up each day and heads straight to her paint set. Her masterpieces are influenced by her favorite color orange, and the outdoor serenity that her home in Colorado provides.

Charlotte
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Raise the Realm Day 6: Leigh- Cancer

My name is Leigh. My first personal experience with cancer was in 1995 when my mother was diagnosed with stage 4 ovarian cancer and given 6 months to live. Her name was Charlotte and she was a visionary. She lived for 6 years instead of 6 months and when I was first diagnosed in 2012 with Stage 1 breast cancer I remembered her words…”I wish I had never done that chemo or the radiation.”

I chose to have bilateral mastectomies after determining I was BRCA positive. I declined the pharmaceutical drugs that were offered to me and went on my own path to healing. That path has included exercise, healthy eating and juicing, keeping stress low, being grateful…my recipe changes along with the seasons.
In April of 2016, I began taking Charlotte’s Web for swelling in my right hand from overwork, not knowing the cancer was back. In late June, with the swelling completely gone in my hand, I scheduled a surgery to remove scar/fat tissue from the site of the previous cancer and it ended up being malignant. I upped the Charlotte’s Web to therapeutic doses along with high-dose THC in August and completed 60 grams of The Stanley Brothers’ THC Concentrate in 60 days after moving to Colorado in November. I have just gotten a clear PET scan. I am so grateful that the laws are changing and the research is finally beginning on cannabis. I know had the researchers been allowed to explore the medicinal benefits of this “weed” there would be more wellness on the planet….and my mother could still be alive. I am certain that CBD/THC are main components to my wellness and I am so grateful for the access I have to these medicines.

Leigh
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Raise the Realm Day 7: Kendell- PTSD

I was a Loadmaster on a MC-130P Combat Shadow during the Tsunami Relief Effort in 2004/2005, seeing mass devastation, and unworldly damage. My world was changed just a few months later when I sustained a dislocated and fractured right leg, and Traumatic Brain Injury. I went through the VA gambit, twice tasting the working end of loaded firearm before I finally decided to quit all medications until I found a better alternative. Sleeping medications, anti-depressants, anti-this and anti-that; I knew I couldn't continue that pace for long. After speaking with family, friends, and fellow veterans, I decided to try cannabis for the very first time on my 28th birthday with some of the most loving people I have in my life. The benefits I see not only help with my PTSD, but also positively benefit my physical health, physical abilities and day-to-day cognitive function.

Since my introduction in 2012, I've competed in 4 Warrior Games, and traveled with MSI Mining to install gold mining equipment around the world, and served as the Director of West Coast Operations for the Road Warrior Foundation- providing Adventure Therapy to our military veterans. No other medication in my life has helped me more than Cannabis and CBD. I hope to continue to show the benefits of this organic option as time goes on.

Kendell
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Raise the Realm Day 8: Luke- Autism

Our little boy who we call Baby Luke, is 4.5 years old, and the apple of our eye. He was born what we believed to be a happy handsome little boy and as parents do we loved him unconditionally.

After a few months we noticed that there were issues in Baby Luke's development, so we brought him to the doctors. Approximately 2 years later, baby Luke was diagnosed with Profound Non-Verbal Autism, massive sight issues and a vestibular condition. We were heartbroken as we knew too well what this meant in Ireland and the hardships both Luke (and us as his parents) would have to face to get schooling, OT, speech, and language etc.

Shortly after Luke's diagnosis, we noticed a massive shift in Luke's behavior, not eating, not sleeping, hurting himself and others, we could see his sensory issues explode in front of us driven by the severe anxiety of his surroundings.

We, at this point, have been surviving on 3 hours of sleep a night, at our complete wits end- the continual crying, the no sleep, the violent outbursts, the self-harming- our little boy was not there anymore; he had changed, he was lost in his own mind, his own condition trapping him to this behaviour.

So, we reached out to doctors, the prescriptions kept coming but nothing worked! So at the last point, we tried Charlottes Web Advanced Solution, starting at 0.2ml twice a day and adjusting the dosage along the way. In the first night, Baby Luke slept 9.5 hours! He was 24 hours away from being admitted to a hospital by our GP for refusing to eat in over 5 weeks and what did our boy do? He started to eat ! Yogurt, apples, bananas, fries, pasta, we couldn't believe it. We cried and cried, as parents angry at ourselves for not trying this sooner, but then tears of joy that our boy would not require a feeding tube.

The results were and still are so amazing that we had to share our story with everyone who would listen. ASD parents have to see with the own eyes to believe what it does.

We started an awareness campaign called Life Being Blue on Facebook. I would recommend any parents in Europe that are on the fence to look at the daily videos look at what it has done for our son and family! Our little boy had gone from skin and bones and riddled with social and neurological disorders, to a child that is trying to communicate trying, to learn and nearly singing! Seeing is believing and Baby Luke's Videos are there for everyone to see!

There is nothing to loose and much to gain!

Please share our page! Education on this is key people who live with severe ASD need to realize that CW is a possible solution to regain a standard of life. And this is key it's about potentially gaining a standard of life.

Daddy Luke, Mommy Donna and Baby Luke Luke
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Raise the Realm Day 9: Mary- Pain

Hi! This is Mary, and Its been almost two years since I participated in Evolve the storytelling project presented by Realm of Caring Foundation, and I wanted to update everyone on how well I'm still doing almost two years later! For starters I'll be celebrating my 59th birthday in a couple of months, and I'm holding steady! Better then steady actually! I'm sure most of my doctors thought all my canna meds (CW, THCA & THC) was going to be a placebo effect. Still they couldn't deny the decrease in pain, increased mental clarity, and my 58 pound weight loss since I started taking my canna meds in May of 2014. The biggest benefit for me was getting off all my prescriptions except for 2 1/2...thyroid, hormone and blood pressure being the half. I did have a setback when my doctor agreed to ween me off my Zoloft after 23 years of use because I was having breakthrough anxiety. That Was A Big Mistake to do that right after Thanksgiving and before the December holidays and to date the hardest thing I ever put myself through. What helped me through that rough spot was upping my canna meds and changing to 200mgs SAMe, (Zoloft replacement) meditation, therapy, a wonderful husband, friends and the RoC community! Keep the faith, and when they (the doctors, the specialist, the government) tell you there is nothing they can do but pump you full of pharmaceuticals call Realm of Caring! The caring of their patients, clients, the quality of the products they recommend, and the fact that they will have your back every step of the way! I say Thank You! Thank You! Thank You! Here's to a better quality-of-life!!!!!

Mary
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