What Separates CW and CWHO?

The Realm of Caring Foundation (RoC) has begun the exciting process of bringing over 3,000 people off the waitlist to start their journey with Charlotte’s Web (CW) and Charlotte’s Web Hemp Oil (CWHO). While these are just two of the products that RoC clients have access to, they are the most talked about. The introduction of Charlotte’s Web Hemp Oil (CWHO) has created some confusion for many people and we hope to clear that up.

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Zaki Celebrates Three Years Seizure Freedom

Zaki Celebrates Three Years Seizure Freedom

Fall is upon us. I love this season. I always have. Even as a child watching with envy as the leaves defiantly did whatever they wanted; changing colors, and then as if saying, “I’m all done here…” falling to the ground to be a crunchy treat beneath my feet. Now, this season marks an anniversary for my family. A time of reflection of what my family has been through with Zaki (not unlike what you have been through.) From 17 pharmaceuticals failing him, hundreds of thousands of seizures, and hospice to Zaki also defiantly whispering in his spirit, “I am all done here….” and his healing beginning. We are three years seizure free in a couple of days, and he has a message for you…

I have a message also. Enjoy the season. Soak up every second with your friends and family. If that decade of unrest taught me anything, it was to be in the moment. I know some of you are away from your “original” family and friends, and I hope that you will connect with your RoC family here during this season; we have a ton of fun things for you to get involved with and make countless memories. You are not alone. In fact you are likely surrounded by more people who “get it” than you ever have been. I am incredibly proud of that. And for those of you not in CO, hold your family close. Enjoy this time. It is all we have. When it is gone, it is never to be regained.

I also get reflective of the year behind us, and tirelessly motivated to end the short remainder of the year with a bang. How many more families can we help? What can we do better? How can we serve you more, those who RoC our world? Whether I see you at the National 5k in a few days, or talk to you over the phone about our research opportunities, or maybe we can break bread at our end of the year client and volunteer appreciation holiday party… know that between now and then, you are in my thoughts, and I am hoping for improved health and quality of life for you and your loved ones. Also know that we are here to assist you in any way we can.

My team extends their love and warmth to you as we enter these last couple of months of another amazing year,

Heather Jackson, Executive Director

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Research Registry Update

Observational Research Registry (ORR) Update

In the last newsletter we announced the launch of the General Observational Research Registry (ORR). Sorry for the delay, we were making it perfect, it has now arrived. We had several willing participants call to find out more information on how to join, thank you for your interest you can enroll now. We sincerely appreciate your willingness to participate! Whether you have pain, cancer, multiple sclerosis or another chronic condition we want to hear about your response with cannabinoid products. The registry is IRB (Institutional Review Board) approved, which is the same process that a University goes through to conduct research. When is the last time you had the ability to impact health care is such a powerful way? If you have any questions, we would love to talk you! This email address is being protected from spambots. You need JavaScript enabled to view it. 719-347-5400 ext 109

Register here

Research Update

Research is a primary mission of RoC. Conducting research produces benefits in a multitude of ways. It provides the scientific information necessary to expand access; it also provides an in-depth look at diagnosis specific dosing for different cannabinoids. It is with research efforts that we have learned how well CBD works in a multitude of different cancers.

It is through research that we have been able to provide undeniable evidence that cannabis is helping with neurodegenerative diseases and it is from research that we can generate statistics on exactly how much money is being saved by clients and subsequently health insurance providers from using cannabinoid products. Your participation will also guide where clinical research needs to advance as well. If you are interested in participating, we have two observational research registries (ORRs): one specific to epilepsy and another for all other conditions. You can find the link in your client portal. If you entered a baseline on the epilepsy ORR, and never touched it again, it is not too late to enter a followup and update us on how you or your loved one is doing now. Thanks for participating and advancing our research initiatives.

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Client Spotlight: Brooklyn Grace

Baby Grace is truly Amazing! She has post vaccine injuries, including seizures and a severe rash. She has been through so much after she received her vaccine, and what I mean by amazing is her strength is solid even with her setbacks. She will still have a smile that will steal your heart. We are confident that we will get her to being two! Even though she is unable to go outside unless we are going to hospital or appointment (the sun affects her skin).

CW has been the most promising help for our baby Grace thus far we are all so thankful I honestly have no idea what we would be doing at this point for Grace if we didn't have CW and RoC.

Her skin is night and day! We have not seen any seizures, skin is looking so much better she more active, more verbal communication, and she seems to be catching up to her milestones, blood work is improving. Her lab's just came back and they are the best they have been since she's been effected by her vaccine! We are so excited about this recovery we are seeing!

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Client Spotlight: Taylor

Taylor started on the CBD oil in December 2015 with Neurologist approval. So the new journey began...

It started out just stopping every seizure without the use of the heavy duty Diazepam rectal gel. To, currently, preventing them all together. Going on 120 days seizure free on the Charlotte's Web CBD therapy. There have been a few mild break thru seizures previous to this seizure free streak, but mild and very short lived compared to what they were before the CBD oil therapy...and with absolutely NO side effects! This is now mandatory to keep the seizures and other issues under control and at bay. Taylor has shown great improvement in seizure control with the oil. Moods are better, No Diazepam needed, and NO seizures currently. Taylor has been able to come off of every prescription pharmaceutical medication out of the 8 he was on except 1 of them, and once he is seizure free for 6 months he will be able to wean off that final pharmaceutical medication. So to this family, Charlotte's Web, Cannabidiol therapy oil, has proven extremely effective and has went above and beyond "said claims". It's like a miracle! I cannot express the magnitude of the positive impact these oils have had on their lives and seizure control! CBD oil helping is great, and wonderful news and a miracle to see happening for their son. Thanks to this amazing "Side-effect free", natural oil, our son is happy, healthy, off big-pharma medications and is seizure free! He has his life back and that is the biggest blessing. We have all we ever wanted for him, good health, happiness, and on the road to life without seizures. So far so good. Whether it decreases them 50%, 75% or 100% , it is all a positive change for him and proof the oil works. It is far better than the 0% he was getting on the pharma medications for all his issues. It is fantastic to see him smiling again and to be able to finally say, "I have Epilepsy... Epilepsy doesn't have me!"

The future may not always be clear or look bright. Sometimes it's like you are given a timer as to how long you can look in life, but no matter how the future looks, we have to look up to the sky, keep our heads held high and pray. Hold on to hope, because sometimes, that's all you've got. Hope , faith, and love... that's what get's us through.

TAYLOR IS OUR CHILD, A CHILD:

A REAL PERSON, WITH REAL STRUGGLES. WHO DESERVES A CHANCE AT A NORMAL LIFE.

CHARLOTTE'S WEB IS GIVING HIM THAT AND MORE!

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