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Special Assignment: #FightForAccess

SPECIAL ASSIGNMENT: We have a special assignment for you. 46 of the 50 states had representatives vote in favor of the Perry/Dold Amendment. However, only about 50 of them are cosponsoring our bill. There are still 252 more that can get on board, and we only need 100 total. We are confident that with your help we can easily meet or exceed that number! Please click here to check if your Representative is one of them. We can’t stress how important you are. It could be your call, email or story to change a mind and make history.

Statement by Senator Orrin G. Hatch

Senate Caucus on International Narcotics Control
Hearing: “Cannabidiol: Barriers to Research and Potential Medical Benefits” Wednesday, June 24, 2015

Thank you for allowing me to step in to make a brief statement.

I’m heartened by the attention this issue is receiving. CBD has shown tremendous promise in reducing the devastating effects of epilepsy. It offers hope to thousands of children nationwide who each day endure terrifying, uncontrollable seizures. It offers hope as well to parents who must endure the repeated agony of helplessly watching as their children suffer seizure after seizure after seizure.

Ask Paige Figi, whose eight-year-old daughter suffered as many as 300 grand mal seizures per week before starting treatment with CBD, and she will tell you that CBD is a lifesaver. After Charlotte started taking CBD, her seizures dropped dramatically. She now suffers, on average, less than three seizures per month and is able to engage in normal childhood activities.

Now, I understand the desire for caution. We’re Congress. We act slowly. But we must remember that these are people’s lives we’re dealing with. These are people for whom a five- or ten-year delay is not an inconvenience, but a potential death sentence.

Letter from the Executive Director

Letter from the Executive Director

Spring is here, the birds are chirping, tulips are blooming, lives are improving, my son Zaki is approaching 30 months seizure free - and filling our fundraising cup is underway. This month’s newsletter is focused on our fundraising efforts and why they are so necessary to the continuance of our organization's ability to serve its mission. When we say that the Realm could not do it without you, we mean it. We receive no government funding of any sort. We are completely and wholly funded by individual donors and organizations like yourself. We do continue to apply for grants but what we do may be considered a little unprecedented, so we have not realized any funding through grants... yet. I hold hope in this area.

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