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Fundraising Close-Up

A close-up message from our fundraising director

I was introduced to Realm a little over two years ago at a viewing party for the first ‘Weed’ special. While I work with my children and their challenges, none of them have medical needs that require daily medications, routine trips to the hospital or a team of doctors. I was introduced to families that call those situations their daily reality. Witnessing the interactions that day between this unique group of people brought together by hope and less than desirable circumstances blew my mind and my heart wide open.

Research Registry Update

Observational Research Registry (ORR) Update

In the last newsletter we announced the launch of the General Observational Research Registry (ORR). Sorry for the delay, we were making it perfect, it has now arrived. We had several willing participants call to find out more information on how to join, thank you for your interest you can enroll now. We sincerely appreciate your willingness to participate! Whether you have pain, cancer, multiple sclerosis or another chronic condition we want to hear about your response with cannabinoid products. The registry is IRB (Institutional Review Board) approved, which is the same process that a University goes through to conduct research. When is the last time you had the ability to impact health care is such a powerful way? If you have any questions, we would love to talk you! This email address is being protected from spambots. You need JavaScript enabled to view it. 719-347-5400 ext 109

Register here

Research Update

Research is a primary mission of RoC. Conducting research produces benefits in a multitude of ways. It provides the scientific information necessary to expand access; it also provides an in-depth look at diagnosis specific dosing for different cannabinoids. It is with research efforts that we have learned how well CBD works in a multitude of different cancers.

It is through research that we have been able to provide undeniable evidence that cannabis is helping with neurodegenerative diseases and it is from research that we can generate statistics on exactly how much money is being saved by clients and subsequently health insurance providers from using cannabinoid products. Your participation will also guide where clinical research needs to advance as well. If you are interested in participating, we have two observational research registries (ORRs): one specific to epilepsy and another for all other conditions. You can find the link in your client portal. If you entered a baseline on the epilepsy ORR, and never touched it again, it is not too late to enter a followup and update us on how you or your loved one is doing now. Thanks for participating and advancing our research initiatives.

Zaki Celebrates Three Years Seizure Freedom

Zaki Celebrates Three Years Seizure Freedom

Fall is upon us. I love this season. I always have. Even as a child watching with envy as the leaves defiantly did whatever they wanted; changing colors, and then as if saying, “I’m all done here…” falling to the ground to be a crunchy treat beneath my feet. Now, this season marks an anniversary for my family. A time of reflection of what my family has been through with Zaki (not unlike what you have been through.) From 17 pharmaceuticals failing him, hundreds of thousands of seizures, and hospice to Zaki also defiantly whispering in his spirit, “I am all done here….” and his healing beginning. We are three years seizure free in a couple of days, and he has a message for you…

I have a message also. Enjoy the season. Soak up every second with your friends and family. If that decade of unrest taught me anything, it was to be in the moment. I know some of you are away from your “original” family and friends, and I hope that you will connect with your RoC family here during this season; we have a ton of fun things for you to get involved with and make countless memories. You are not alone. In fact you are likely surrounded by more people who “get it” than you ever have been. I am incredibly proud of that. And for those of you not in CO, hold your family close. Enjoy this time. It is all we have. When it is gone, it is never to be regained.

I also get reflective of the year behind us, and tirelessly motivated to end the short remainder of the year with a bang. How many more families can we help? What can we do better? How can we serve you more, those who RoC our world? Whether I see you at the National 5k in a few days, or talk to you over the phone about our research opportunities, or maybe we can break bread at our end of the year client and volunteer appreciation holiday party… know that between now and then, you are in my thoughts, and I am hoping for improved health and quality of life for you and your loved ones. Also know that we are here to assist you in any way we can.

My team extends their love and warmth to you as we enter these last couple of months of another amazing year,

Heather Jackson, Executive Director

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