Written by mom Tammy
Scotlyn had her 1st seizure at 4 months old in September 2016. After an EEG and MRI she was diagnosed with epilepsy and put on Keppra. She continued to have seizures which got progressively worse with every pharmaceutical added and was constantly in and out of the hospital. By 5 months old in October 2016, she was on 7 AED meds at once, in the PICU of Children's Hospital in status (constant seizing), and she was having 17 + seizures an hour around the clock. The medicines she was on at one time at 5 months old is sickening. Keppra, Trileptal, Vimpat , Topamax, Klonopin, Ativan, IV Versed (and still seizing on all of that).
The doctors had nothing left but a medically induced coma so asked if I could please try CBD oil and they said yes. Her condition improved rapidly after just the first dose. She was diagnosed with intractable epilepsy and probable cortical dysplasia. In November she developed infantile spasms so the doctors tried a powerful steroid called ACTH.
So out of desperation I contacted Realm of Caring to see if they had any advice. I spoke with Lacie (who is amazing by the way), she gave me dosing instructions and once I got Scotlyn to 1.75 mg in 3 days her spasms stopped - never to be seen again!! Today, Scotlyn is 2 1/2 years old, she is down to 2 seizure meds (we tried a total of 12 AED’s and failed before trying CBD oil) She is walking, running, eating, playing, and a pretty typical 2 year old. She is finally starting to talk. She couldn't even sit up supported at 1 year old so these milestones are so very amazing to us and she continues to amaze us everyday.
She has not been admitted to the hospital since November 2016!! We are so thankful for Realm of Caring and Lacie, CBD oil - epilepsy's arch nemesis. God Bless all of you. Sometimes it truly does take a village. You all contributed to giving me my daughter back and giving her quality of life. Thank you so very much.