Welcome to the RoC Blog

We just noticed he has dimples because now he can smile

We just noticed he has dimples because now he can smile

Written by mom Roberta

At 5 months old we started noticing Matthew wasn't progressing in milestones, as he should. At 17 months he started having seizures, and he has had multiple seizures every day since then. He would have every type of seizure you could imagine. Shortly after diagnosed with seizures, he was diagnosed with a rare genetic condition.

We have tried around 12 different seizure medications, with no help. Even (ACTH), that will grow hair in places babies shouldn't have. We also tried the medication Felbatol that can cause liver damage. The ketogenic diet has helped the most even though he would still have a hundred seizures daily. We started CBD oil at the end of March, and by the end of May, Matthew was seizure free. This is the first time since Matthew was 17 months old.

Matthew is such a sweetheart, full of smiles and giggles. We just noticed he has dimples because now he can smile. Every day has been a good day. Before he would just lay around with no energy and now he is full of energy. Please make this oil available for all who need it. Just imagine the change it could make in the world.

Realm of Caring

Written by : Realm of Caring

1000 Characters left


1