Ezra’s story is an incredible one, to say the least. This little boy has been through more than most adults will ever imagine in a lifetime. Ezra suffers from a variety of different conditions starting with seizures from a rare disorder called Lennox Gastaut Syndrome (LGS). He also has dystonia, chronic pain, muscle spasms, chronically dislocated hips, osteopenia, bilateral amblyopia, scoliosis, possible metabolic disorder, gastroparesis, GERD, and multiple food allergies.
His seizure disorder began just a few days after birth and the subsequent conditions are the result of a variety of reactions over time. Ezra has undergone many surgeries including a feeding tube placement when he was only 2 years old. During that time samples were taken from his liver, thigh muscle, and skin to test for a mitochondrial disorder.
Over the years, Ezra has been on more than 40 different prescription drugs ranging from seizure medications to heavy duty pain medications such as fentanyl patches, morphine, ketamine, muscle relaxers, and the list goes on.
For such a young, fragile body how could any of these pharmaceuticals be a healthy option? His organs were failing from all of the harsh and toxic chemicals. His family knew it was time for a change.
Like many families in this Raise the Realm project, Ezra’s family moved to Colorado Springs in July 2013 from Boiling Springs, South Carolina to get safe and legal access to medical cannabis. Ezra’s mom says, “It was a no-brainer to try a natural healing route to allow his body to learn to function and thrive as God intended.”
Since 2013, Ezra has definitely been thriving from cannabis therapies! He uses cannabis oil made with a combination of high THC and low CBD and this has given him a 90% reduction in seizures. Wait, there is more because Ezra’s list of benefits continues to grow each day. Cannabis also keeps his chronic pain manageable, is improving his bone density, healing his gut and minimizing his reflux, improving his vision, and reducing his muscle spasms by 98%.
This medicine is providing amazing mental clarity allowing Ezra to express himself with the use of an eye gaze communication device. He continues to learn several concepts which correlate to those of his peers. He has been able to develop a system of communication with his family members when a communication device is not available. Eye contact, smiling, and nonverbal communication are things that were not possible before cannabis therapy. When we asked Ezra’s mom, Marisa, does she have anything to add? “Cannabis is lifesaving medicine!” she exclaims.
Ezra uses a combination of THC and CBD oil, cannabis leaf juice, rosin, rescue vaping or nasal spray, and homemade topicals. It took a couple of years to find the perfect concoction, but Ezra is doing better than ever. He continues to grow and develop and his body is healing after the use of the pharmaceuticals. At one point he was in hospice care, and now he exudes radiant health!
Ezra is age 6, his older brother Noah age 9, Odin is 2 and baby girl Selah age 7 months.